Headbands: Enticing Treats
Life has been challenging in our home lately. If it's not one of the little girls causing trouble it's all three at the same time.
not wanting to sleep
baby throws her food and dumps out her drinks
baby climbs out of her bed, gets into everything and hardly sleeps now
I have a daughter with special needs and it is a huge challenge.
Her tantrums are severe and must run its course which could last for an hour straight sometimes.
By extreme, I'm talking slamming things, banging on the walls, screaming like there's a homicide going on all the while she's just sitting or standing on one side of the house by herself with no one touching her or even looking at her.
It consists of her coming up to my face, screaming at me full force, hitting, kicking, pushing and shoving.
She has super strength and is all muscle.
Daily, after she returns from school it's a huge battle that gets set off for no reason at all.
It's exhausting because some mornings it happens when I wake her up and try to get her ready for school.
There is so much I want to do with my Blog, my shop, my house, my girls, my marriage, my older kids, my family, my grandkids....
but this behavior gets in the way of all of it.
I haven't talked about it before because I really don't know how to put it into words.
My daughter was born with Beckwith-Wiedemann Syndrome and after years of begging all her doctors and specialists to take a look at her because something is not right, they finally agreed to get her tested.
She was diagnosed with
developmental cognitive delay.
She was very young when she was tested last so it may not be completely accurate and we need to get her tested again.
Things seem to be getting worse and her specialists and doctors are starting to be concerned.
I write this now because the usual happened again today.
We needed to run errands, waited for her to get home from school and when we were ready to go she started up again while trying to load up into the car.
It got to the point where my husband was losing it and he is more patient than I am. He took her into her room and you can hear her screaming, pounding, slamming things, and yelling all kinds of stuff.
It’s been an hour and only now there is silence.
There is WAY more to this than I can possibly write out right now.
I ask for your prayers as we continue in finding out what is going on with her.